Media, Internet

CancerSupportNet.com Launches


CancerSupportNet.com hopes to translate the collaborative power of real world support groups onto the Internet.

Social Sciences Net, a social media startup focused on health care, launched the targeted social network Wednesday.

After the loss of a close friend and former business partner to testicular cancer, Jack Brandt, Social Sciences Net founder and president, wanted to create a place for cancer patients, survivors, and their friends and family to collaborate and research treatment options.

“You’ve already gone to WebMD…now you want to ask someone, ‘what’s it really going to feel like when I go to chemo...’ I don’t think you can get that with MySpace or Facebook,” said Mr. Brandt.

Akin to other social networks, the cancer-focused site hopes to connect people in similar situations through profiles, chat rooms, email, instant messaging, friend lists, and blogging. A recently diagnosed cancer patient can search for other people living in their area with the same type of cancer and then “shoot them an email with a couple of silly questions,” said Mr. Brandt. This can lead them to chat and connect as friends online, and “the network builds virally from there.”

The Montclair, New Jersey-based startup is not alone in trying to bring the benefit of support groups online. The American Cancer Society Cancer Survivors Network, My Cancer Place, CancerMatch, and Not Defeated are among the other social networking and health information sites aimed at those dealing with cancer. Startups such as Redpoint Ventures-backed DailyStrength, which hosts more than 500 support groups, CarePages, and PatientsLikeMe take a broader approach by offering community features under multiple categories, including HIV/AIDS and depression.

Although the basic human need for connection predates the Internet, patients are no longer limited to their geographical location, noted Susannah Fox, a researcher with the Pew Internet Project. “You might be the one person in town with a certain rare form of cancer, but online you can connect with 50 other people and make sure that you are all up on the latest research,” she said.

According to a 2006 Pew Internet Project report, “eighty percent of American Internet users, or some 113 million adults, have searched for information on at least one of seventeen health topics.”

“Health care doesn’t always happen during office hours,” said Ms. Fox.

Analysts anticipate that health-focused social networking sites will continue to grow.

As Gen X and Gen Y move into care-giving for the boomer generation, and as they face more personal health issues themselves, they are likely to turn to these sites for advice and support, said Forrester Research analyst Chloe Stromberg.

In addition to providing a benefit to the greater community, there is money to be made here.

“If these sites are successful in providing social support, people feel gratitude and loyalty,” said Ms. Stromberg. Advertisers have an opportunity here to transform that gratitude to their advantage. This could be particularly attractive to pharmaceutical companies that often struggle with consumer trust issues, she said.

Currently ad-supported, Mr. Brandt plans to bring in additional revenue with local search features, such as an oncologist database. Oncologists could then add detail to their business profiles for a small fee.

Social Sciences Net is currently funded by Mr. Brandt’s “back pocket,” but he plans to seek venture capital or angel investors after proving the business model.

The startup plans to launch similar sites related to diabetes, asthma, depression, and HIV/AIDS in the months to come.

Comments

avatar
Seems a little late in the game. Also, the site looks pretty weak. Check out www.webtribes.com - I'm a member of www.depressiontribe.com and that site is terrific.
avatar
I agree with Jen Jonas..the site looks weak. More to the point, Mr Brandts blatent desire to make a $ off of survivors is a total turnoff. At least, on http://www.cancermatch.com , there is a survivor led environment in a non profit atmosphere. Also, CancerMatch is just a nicer cancer survivor social network.
avatar
I got a blurb from these guys trying to find out how I have so successfully built my Rare Cancer website and forums: http://survivor-support.rare-cancer.org/forum/ I ignored the email. I have been advocating for rare cancer patients since 1998, when I was diagnosed myself. It takes a lot of hard work, long hours, money, and caring to do this type of support work. Take Care, Sharon
avatar
My Cancer Place http://www.mycancerplace.com is a total non-commercial website that has more network functionality than this new site. We have nearly 400 members from almost 40 countries. Anyone who is a cancer patient or the loved one of a cancer patient is invited to join. Our members provide emotional support to each other, share information and resources, and report on scientific advances and political challenges.
avatar

I came across this as I am avid reader of RedHerring.com.   

Being in the Internet industry myself (Webhosting), I know it takes time, money, and effort to build and maintain something original, no matter what the business model.  While it seems you all have sites that have been around and are medically centered (yes I looked them all over carefully), Mr. Brandt has built something from the ground up (and I may be wrong).  From the look of everyone critiquingI would like to briefly discuss your models; one of you has gone out and purchased a copy of "PHP Fox" which is not original to looks like myspace, one of you has a free install forum from something like fantastico in Cpanel (all you had to do were create categories and upload a logo), and the other has a completely free version of a weak solution that looks like myspace.  The only one of the four sites mentioned above that seem to carry any weight is the webtribes.com site who either spent a lot of time and/or resources presenting something of interest.  So, that is the only one here that I feel has any merit, and unfortunately it does not address the cancer topic in which they are even critiquing. 

In addition, many shoestring operations (Mr. Brandt’s “back pocket” funding) that I have seen started in the past, have survived to become very successful.  As for making money off of his site, I cannot say, but it makes sense that in order to scale and grow beyond a shared hosting account (should that be what he is using) it takes some money behind you, not to mention that dedicated servers with redundancy, backup, and development can be expensive ventures monthly.  Lets not even mention HIPPA regulations, and whether or not all the sites mentioned, including the one you are critiquing are taking that into consideration. 

That said, lets discuss maintaining a Web 2.0 technology and their business models... Seems all Web 2.0 business models are built to sell off to another company, and not to be maintain a business model behind them.  If Mr. Brandt is maintaining his site with Advertising - that means there is a business model behind it.  That means there is possibly a business plan if he is looking for Venture capital, and that means he is looking to maintain a business which will sustain long term funding to enhance his business model.  Fair to say?  Seems so to me, and from the interview.  Would it be fair to ask the more users he can scale to the more people can collaborate, learn/support each other,  and use his "library" for research (I signed up for a free account to test it out).

Also interesting that he has gotten national press where all others except webtribes.com have not. 

My advise is watch your competitors closely.  Wait, if none of you have a business model behind you, then you are all not competitors, are you?  Just something to think about.

I am not defending Mr. Brandt, his venture could fall flat on its face at some point.  However, it seems like he or his organization is trying to do something good.

If I must say, it is pretty poor business sense to critique someone the way the four of you have.  And one of you is a user and not a site owner, so I cannot cast blame on you.  Oh, and lastly, it seems odly strange that a couple of you feel compelled to mention your URLs to market your sites without having to actually work to market them... Smells a bit like being a parasite to me.  Some of you should take a business ethics course.

avatar
This is in response to level1.ops You are entitled to your opinion even one that is baseless. You are defending a website without identifying yourself or your interest. You critique the other websites that are already providing a service to cancer patients as not carrying any weight and not having any merit. My name is Michael Horwin. I am the manager of MyCancerPlace, a non-commercial cancer community on the Internet. Below are a sample of some of the comments I have received. They are all available here: http://www.mycancerplace.com/profile.php?id=29 After you read them please post who you are, what your interest is in this subject, and how you can possibly conclude that MyCancerPlace has no merit. • Thank you for being the first to welcome me to this site. God bless you for your total involvement to allow people to have their voices heard and to share their cancer journeys with others. • Your website is heaven sent, and you will continue to be blessed, by what you are doing. Thank you for providing the vessel to spread hope, knowledge and love to so many of those who are suffering quietly. • This web-site is very, very fine. All the best! • Thanks once again for having this place for us. • Hi, I was looking for a space to talk to someone about cancer and ran across your site. Thanks for being out there. • Thanks for this web site you are doing a great service for cancer patients • Just saying hello what a wonderful site. • Thanks for your welcoming message, and a big thank you for providing this site. • Thank you so much for your efforts here. This is a wonderful place. • I just wanted to say thank you, not only for providing us with a "home" but for projecting such a positive, proactive attitude. I admire the fact that you were able to create something so positive for others from such adverse personal circumstances; that takes a great deal of strength, determination, commitment and character. Thanks again! • Thanks for giving us a home. • I was stunned at the lack of support given to people in my chemotherapy group---this is exactly what is needed. • I think "My cancer place" is a great inspiration for all cancer patients...and you are so right in saying that all cancer patients need other cancer patients for emotional support...I know I certainly do...
avatar
you guys talk from a third party point of view. i'm a patient and look at these differently. i don't care if someone is making a $ out of, good for him! i just want to get all the help i can and for free. DailyStrength is great. CarePages - too 'revolution health' now used to be great too. PatientsLikeMe have only 4 groups so i don't fit in and one more site mdjunction is similiar and nice. people deserve to make some money if they are doing good stuff to others, no reason for everyone to be not-for-profit (it will limit the amount of people that do these initiatives)
avatar
Hey everyone.  This is Jack from Social Science Networks, and the creator of cancersupportnet.com.  I personally think the arguing here is pretty baseless.   I have looked at all the sites mentioned in the above posts and it seems they are all doing a good job of helping their member/users in the way that they can.  It is my belief and opinion that any communication that a patient can have with a peer helps them maintain a better lifestyle.  I see no reason to bash each other.  Does CancerSupportNet.com need additional work; I will answer that and say that if we are all addressing the same or similar market, all our sites will require continuous work to make sure our memberships get the mental and other support system(s) they require.  As for Michael Horwin's comment above, I say good job!  If your users are that happy with your service I commend you.  You should all know I do not speak from a position of  ever being diagnosed with cancer, albeit like many, I have close friends and relatives that have suffered and fallen from the disease.  This is the basis for the network; a forum for discussion, learning, and piece of mind. 
avatar
I can't believe all of the silly snipping going on here. I read this article with hope of finding help with my breast cancer diagnosis. All I can say is, thank goodness for Komen Foundation, http:/www.CancerMatch.com and the Lance Armstrong Foundation.
avatar
I agree Mary!